Privacy Policy/Policies

Welcome to Listentoyourbodyinc.org.

The safety of your privacy is important to us. Please view our Privacy Policy as it pertains to your use of this website, what types of information may be collected and by whom. Your use of this website is also subject to our Terms of Use.

Listen To Your Body Inc. and its partners may collect personal information from you to provide you services. This is including, but not limited to contact, demographic, health and financial information. All information will be kept confidential and only be used for the purpose of serving you, the consumer.

Safety and Security

Listentoyourbodyinc.org provides users access to resources, including, but not limited to, public forums, health and medical content, online tools, email, and various services. Listen To Your Body Inc. assumes no responsibility or liability for the timeliness, deletion, mis-delivery or failure to store any user communications or personalized data or settings. All such risks shall be borne by you.

Although your privacy is important to us, there are no impenetrable security measures. You maintain that any information you transmit to us is done so at your own risk. If we learn of a security systems breach we may attempt to notify you electronically so that you can take appropriate protective steps. By using this website or providing personal information to us, you agree that we can communicate with you electronically regarding security, privacy and administrative issues relating to your use of this website. We may post a notice via this website if a security breach occurs. We may also send you an email at the email address you have provided to us in these circumstances.

Data Anonymization & Grant Reporting

Notice on Anonymized Data & Grant Reporting

To sustain our mission and keep programs accessible, Listen To Your Body Inc. frequently applies for community grants. We share high-level, statistical data with our funders to demonstrate our impact.

How we protect you: All data used for reporting is anonymized and aggregated. We report numbers and trends (e.g., "Serving 100 individuals in the 31-45 age range") rather than individual identities. Your Name, Phone Number, and specific personal notes are kept strictly confidential and are only accessed by authorized LTYB staff to provide you with direct support.

Your Rights & Contact Information

We believe you should have full agency over your personal information. At any time, you have the right to:

Access: Request a copy of the data we have on file for you.
Correction: Ask us to update or change any information that is inaccurate.
Deletion: Request that we permanently delete your snapshot data and personal profile from our systems.

How to Reach Us: If you would like to exercise any of these rights, or if you have questions regarding this Privacy Policy, please contact our Data Privacy Coordinator at:

Email: privacy@listentoyourbodyinc.org Subject Line: Data Request – [Your Full Name]

Please note: While we can delete your personal identity and individual responses, any data that has already been anonymized and aggregated into high-level community reports (as described in our Notice on Anonymized Data & Grant Reporting) cannot be individually retrieved or removed.

Digital Advocacy Champion (DAC) Policies

1. DAC Privacy Supplement

This section explains how we handle your social media data.

Data Use: We collect your social handles and track the #LTYBDAChampion hashtag solely to verify your participation, award your digital badges, and acknowledge your impact.
No Third-Party Sharing: We do not share your handles or email with outside marketers.
Public vs. Private: We respect your privacy settings. We can only track public posts. For private accounts, you must tag our official handles to be credited for your advocacy.

On Instagram: @listentoyourbody_inc

On Facebook: listentoyourbody_inc

On YouTube: @ListenToYourBodyInc

Opt-Out: You can leave the program and have your data removed at any time by emailing us at dachampion@listentoyourbodyinc.org.

2. DAC Code of Conduct

This section outlines the standards for representing the LTYB mission.

Purpose: The DAC program exists to amplify life-saving health information and bridge the gap in healthcare equity. As a Champion, you are an extension of our voice. We ask that you lead with heart, accuracy, and respect.

Lead with Empathy & Respect Our mission is rooted in supporting survivors and those in treatment. We expect our Champions to maintain a tone of kindness and support. We have zero tolerance for harassment, bullying, or derogatory language toward any individual or community.
Accuracy Matters To protect our community, Champions agree to share only official information from Listen To Your Body Inc. or verified, reputable health sources. Please avoid sharing medical "cures," unverified advice, or health misinformation while using the #LTYBDAChampion tag.
Intentional Advocacy The #LTYBDAChampion hashtag and our digital badges are symbols of our mission. We ask that you do not use these assets to promote unrelated products, political agendas, or content that conflicts with our mission of health equity and breast cancer awareness.
Respect for Privacy As an advocate, you may encounter stories from survivors in our community. Champions must respect the privacy of others. Never share someone else’s personal health story or data without their explicit, written permission.
Brand Integrity The Spark and any additional badges unlocked are earned honors. They should not be altered, sold, or used to imply a formal partnership, employment, or endorsement by Listen To Your Body Inc. beyond the scope of digital advocacy.
Right to Disassociate Listen To Your Body Inc. reserves the right to remove any individual from the DAC program and request the removal of our hashtag/badges from content that violates this Code of Conduct or harms the reputation of our mission.

Partnership and Sponsorship Inquiries

Partnerships & Sponsorships Data

Partnership & Sponsorship Inquiries

When you submit a Partnership Inquiry, we collect specific business information, including your organization’s name, contact details, and strategic goals.

Document Security: Any uploaded proposals or decks are stored on secure servers and are accessed only by the Listen To Your Body Inc. executive review team.
Confidentiality: We treat your proposed investment levels and strategic alignment statements as confidential business information. We do not sell, trade, or share this data with outside marketing entities.
Purpose of Use: This data is used solely to evaluate potential collaboration and to facilitate communication between LTYB and your organization.

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Volunteer Code of Conduct

1. Our Shared Commitment

At Listen To Your Body (LTYB), our volunteers are the heartbeat of our mission. By joining us, you represent a movement dedicated to breast cancer awareness, health equity, and empowering individuals to trust their intuition in the exam room. We expect every volunteer to act as an ambassador of hope, dignity, and advocacy.

2. Core Principles of Service

Empathy & Active Listening: Our name is our mission. We listen to our bodies, and we listen to our community. Volunteers must approach every survivor, "warrior," and family member with deep empathy, a non-judgmental ear and with the utmost respect.
Inclusivity: LTYB serves a diverse community. We have zero tolerance for discrimination based on race, age, gender identity, sexual orientation, or socioeconomic status. We are here for everyone.
Empowerment: Our goal is to help others find their power. Volunteers should encourage self-advocacy and provide resources that help our community members navigate their health journeys.

3. Professional Standards

Reliability: Whether you are assisting at a "Nail It Night," a Fitness Party, or the Glam & Glow Expo, we rely on your presence. If you cannot fulfill a commitment, please provide as much notice as possible.
Representation: When wearing LTYB apparel or representing the organization at events/online, please maintain a positive and professional demeanor.
Confidentiality: You may encounter sensitive health stories or personal information. Respecting the privacy of our survivors and participants is mandatory. Never share personal details without explicit consent.

4. Health & Safety

Trauma-Informed Conduct: If a participant becomes overwhelmed, remain calm. Escort them to a quiet area and notify a Lead Coordinator.
Boundaries: While we provide emotional support and resources, volunteers (unless clinically licensed and authorized) must not provide medical diagnoses or clinical advice. Always redirect participants to professional medical resources or LTYB-approved allies.
Self-Care: We believe the health of the mind determines the health of the body. We encourage our volunteers to "listen to their own bodies." If you feel overwhelmed or need a break, please communicate with a team lead.

5. Digital & Social Media Conduct

Amplification: We encourage you to share LTYB news and events! When doing so, ensure your posts reflect our values of "Empowerment, Impact, and Awareness."
Respectful Dialogue: In virtual meetups or on social media threads, maintain a supportive environment. Avoid medical misinformation or disparaging remarks about healthcare providers or other organizations.

6. Accountability

To protect our community and the integrity of our mission, LTYB reserves the right to dismiss any volunteer who:

Engages in harassment or discriminatory behavior.
Breaches the confidentiality of a community member.
Acts in a way that significantly misrepresents LTYB’s mission or values.

Volunteer Acknowledgment

"By volunteering with Listen To Your Body Inc., I commit to upholding the official Volunteer Code of Conduct. I understand that my role is to empower, support, and bring awareness to our community, ensuring that every voice is heard and every body is respected."

To download the printable version of the full Volunteer Code of Conduct, click here.